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Go Red For Women

Go Red For Women

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An Open Birthday Card to My Big Brother

                                                                                                                                   Nov. 19, 2017 Dear Andrew, This year I decided to write you a birthday card.  My boyfriend Ian, whom I've been with over a year and who I think you would like asked, "So do you guys give Andrew birthday cards?" My response was "No, we just don't." Ian then asked "Do you have a cake for him, because I want to honor him how you guys do. Would it be OK if I bought an ice cream for him to have at your mom's house after dinner on Sunday." (Yes, it's Sunday, November 19, 2017.)  See I told you, you would like him.  He's all about wanting to have ice cream cake. Oh, wait that's why does David likes him.  But enough about the ice cream cake that we are not having, or the cards, gifts,  and candles that we no longer do on your birthday.  Instead we go to Rick's and reminisce about the time we were lucky t

A YEAR WITHOUT MUSIC!

A YEAR WITHOUT MUSIC! This memory could not be more timely. April 5,2016 i had a major stroke. This Wednesday will be one year since my stroke. For the first 2 months all I could say to people was "I had a stroke" which sounded like stwoke . Music had not even occurred to me as I had many complications that were not directly associated with my stroke. But why am I sharing all of this information with you, is because the part of my brain that was affected or is it effected? Was language. I planned to sit down today at my computer which us still hard for me to do texting us easier with my right hand weakness. Oh I forgot to mention that I was temporary paralyzed on on right side for 24-48 hours. But "I had a stroke". I would have to l this year as a year without music. Couldn't recall what I'd forgotten and then sobbed when I remembered what I forgot without remembering the music, show, favorite singers... you name, I was like a blank slate. (Sir

What It Really Feels Like

What does it really feel like to have a CHD? Well not great all the time. There's constant let down in life as doctors figure out how to treat us adults. There is a lot of trial and error medically based which is why I say I'm in 'Generation Guinea Pig'! My first memory was my mom changing my younger brother's diaper and telling me that when we got back home from vacation I was going for a cardiac cath. So I'm 4 1/2 years old. I don't recall crying which I was told I did but I already knew what a cath was it wasn't new to me. Neither was my addiction to Annie the Musical, my mothers voice or my desire to sing like them be on stage and be a mommy when I grew up. I wanted to sing and be a mom as a grown up and of course I'd have a cute husband. When mom, David and I walked to the beach my father was there with Andrew who was just told about my going to the hospital too. In those days we were pals and he found me a sea shell- my favorite.  31 years l