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Showing posts from November, 2013

What It Really Feels Like

What does it really feel like to have a CHD? Well not great all the time. There's constant let down in life as doctors figure out how to treat us adults. There is a lot of trial and error medically based which is why I say I'm in 'Generation Guinea Pig'! My first memory was my mom changing my younger brother's diaper and telling me that when we got back home from vacation I was going for a cardiac cath. So I'm 4 1/2 years old. I don't recall crying which I was told I did but I already knew what a cath was it wasn't new to me. Neither was my addiction to Annie the Musical, my mothers voice or my desire to sing like them be on stage and be a mommy when I grew up. I wanted to sing and be a mom as a grown up and of course I'd have a cute husband.
When mom, David and I walked to the beach my father was there with Andrew who was just told about my going to the hospital too. In those days we were pals and he found me a sea shell- my favorite. 

31 years later…